Estonia

Legislation

• Human Genes Research Act (2001) This Act regulates the establishment and maintenance of a Gene Bank (national genome project in Estonia).
• Databases Act (1997)
• Personal Data Protection Act (2003); a new Personal Data Act (official translation) entered into force on 1st Jan 2008.

Useful References

• Kaye. J, Helgason HH, Nomper A et al “Population genetic databases: a comparative analysis of the law in Iceland, Sweden, Estonia and the UK.” TRAMES 2004; 8: 15 – 34.
• Gibbons, S. et al ‘Lessons from European population genetic databases: comparing the law in Estonia, Iceland, Sweden and the United Kingdom’ (2005) 12 EJHL 103.
• Kaye. J “Do we need a uniform regulatory system for biobanks across Europe?” European Journal of Human Genetics (2006) 14, 245 – 248.
• Gibbons, S., “Are UK genetic databases governed adequately? A comparative legal analysis” [with Estonia, Iceland and Sweden] Legal Studies, Vol. 27 No. 2, June 2007, pp. 312–342.