Japan
Resources
This page is intended to present key information on privacy and genetic research relevant to Japan. It contains links to key Japanese public attitudes surveys and reports from relevant organisations. Please use the contact pages to make any suggestions or to inform us of any new research.
Language of privacy
In Japanese there is no native word having the same concept of English word privacy. To express the concept, they use the word showing the sound of English word of privacy in Japanese letters (Japanese syllabary).
Public Interests
The PRIVILEGED network member for Japan reports few public attitudes surveys except:
- The Personalized Medicine Project (Biobank Japan stores the samples and information) holds symposia for discussion where questionnaires are given out.
Useful links
- Biobank Japan website (ELSI Committee) in Japanese
- Bioethics Committee, Council for Science and Technology (2000) Fundamental Principles for Research on the Human Genome.
- British Embassy (2005) The Personal Information Protection Law and its Impact on the Use of Genetic Information Guidelines in Japan. Includes information on the revised guidelines.
- METI Guidelines on Commercial Usage of Genetic Information, 2004 (in Japanese)
- Ministries of Education, Culture, Sports, Science and Technology (MEXT); Health, Labour and Welfare (MHLW); Economy, Trade and Industry (METI) (2001) Ethical Guidelines for Analytical Research on the Human Genome/Genes Note this was revised in 2004 in response to the Act on the Protection of Personal Information.
- Porter, G. (2004) The Regulation of Human Genetic Databases in Japan SCRIPT-Ed 1:3, 449-487
- PRIVIREAL Information on Japan and Data Protection
- Ryder, S. (2005) Scientists Create Japan’s Largest BioBank for Genetic Studies of 47 Common Diseases (Interview with Yusuke Nakamura) Affymetrix Microarray Bulletin 1:5
