Netherlands
Resources
This page is intended to present key information on privacy and genetic research relevant to The Netherlands. It contains links to key Dutch public attitudes surveys and reports from relevant organisations. Please use the contact pages to make any suggestions or to inform us of any new research.
Language of privacy
In Article 10 of the Dutch Constitution the right to privacy is laid down as recht op bescherming van de persoonlijke levenssfeer, which can be translated as ‘right to protection of private life’. The term persoonlijke levenssfeer is also widely used in literature and the media, and it has more or less the same meaning as it has in English. In a wider sense, persoonlijke levenssfeer relates to a private sphere where one can withdraw from the public domain (the right ‘to be let alone’).
Eurobarometer
- Directorate General Press and Communication (2005) Social values, science and Technology (Special Eurobarometer 225/ Wave 63.1). EC Directorate General Research. Relevant questions: Q15.a.3, Q17.
- Gaskell, George et al (2006) European and Biotechnology in 2005: Patterns and Trends (Eurobarometer 64.3). London, London School of Economics. A report to the European Commission’s Directorate-General for Research. Relevant question: Q5.3.
Relevant Interests Expressed by the Public
No surveys were reported which attempt to directly identify public attitudes towards genetic privacy and/or biobanking.
Relevant Interests Expressed in Different Contexts
Public Surveys on Genomics
- Pin, R. and Gutteling, J. M. (2005) Publieksonderzoek Genomics 2005 (Public Survey Genomics), University Twente (In Dutch, with English summary)
- Stichting Consument en Biotechnologie (2002) Publieksonderzoek (Public Survey) Genomics, The Hague (In Dutch)
Attitudes towards genetic testing
- Henneman, L. et al. (2006) Public attitudes toward genetic testing: perceived benefit and objections, Genetic Testing 10: 139-145
- Morren, M. et al. (2007) Perceived genetic knowledge, attitudes towards genetic testing, and the relationship between these among patients with a chronic disease, Patient Education and Counseling 65: 197-204
- Rathenau Institute (1995) (Platform of Science and Ethics) Predictive genetic research: where are we going? Consensus Conference, Report
Attitudes towards privacy
- Ooman, I and Leenes, R (2008) The PRIME survey - a study regarding privacy attitudes and behaviour of students in the Netherlands, Flanders and the UK. Conducted on behalf of the PRIME Project (Privacy and Identity Management for Europe).
Organisations and Industry Reports
- Advisory Council for Science and Technology Policy (AWT) (2001). Social Aspects of Developments in Human Genetics (Letter to Ministers).
- Ministry of Health, Welfare and Sport (2005) Policy Document - The Application of Genetics in the Health Care Sector (2001 Version)
- Royal Netherlands Academy of Arts and Science (KNAW) (2006) Multifactorial diseases in the genomics era, Amsterdam (in Dutch with summary in English)
- Organisation for Health Research and Development (ZonMW) (2003) Application of genetics in the health care sector: consequences of new developments for existing legislation, The Hague.
Useful Links
